tag:blogger.com,1999:blog-10518106.post6990149062335593079..comments2023-09-21T10:50:52.425-04:00Comments on Stress is the New Black: A huge bump in the road that we never saw comingLife with JJ, Starr and Spicehttp://www.blogger.com/profile/08314621220679518722noreply@blogger.comBlogger24125tag:blogger.com,1999:blog-10518106.post-40208905691262569532010-08-03T20:46:09.618-04:002010-08-03T20:46:09.618-04:00Ironically- I just came to your blog from "ra...Ironically- I just came to your blog from "raising sungflowers" blog. I am adopting a (legally) blind child from China- I leave the 13th. We do not know exactly what he has- but believe it is Peter's Anomaly. I will be praying for your daughter!Janethttp://www.5hurleykids.blogspot.comnoreply@blogger.comtag:blogger.com,1999:blog-10518106.post-16592585485738535122010-08-03T07:37:53.452-04:002010-08-03T07:37:53.452-04:00Lori
Please know that our prayers are with you and...Lori<br />Please know that our prayers are with you and the doctors - that everyone has what they need to provide the best result possible! She is in good hands and has so much love around her! <br />Carol in FLpark ithttps://www.blogger.com/profile/13071922247298451903noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-34639180242161860042010-08-02T10:31:15.103-04:002010-08-02T10:31:15.103-04:00I am so sorry!! Katie and ALL of you are in my pra...I am so sorry!! Katie and ALL of you are in my prayers!! Hugs to all of you..Dianahttps://www.blogger.com/profile/05590329522054940452noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-47374970720305223042010-08-02T06:57:18.697-04:002010-08-02T06:57:18.697-04:00How very scary, and a long time to wait to get ans...How very scary, and a long time to wait to get answers...I will definitely be praying for her, and you too! You have bravely handled so much that has been thrown your way over the last couple of years, and Katie is lucky to have such a strong momma to help her through whatever comes her way. <br /><br />Hugs,<br />JenJen@KerrnalJournalhttps://www.blogger.com/profile/10756704169906245142noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-3117374120161879192010-07-31T20:24:48.109-04:002010-07-31T20:24:48.109-04:00How scary. Keep positive thoughts. My prayers ar...How scary. Keep positive thoughts. My prayers are with you all.Life frome where we arehttps://www.blogger.com/profile/01552278542585818216noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-24662499066325886332010-07-31T18:04:35.590-04:002010-07-31T18:04:35.590-04:00So very scary, sending good thoughts your way.So very scary, sending good thoughts your way.Lisa~~https://www.blogger.com/profile/02632507779742615043noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-26825283462634091352010-07-31T13:43:15.071-04:002010-07-31T13:43:15.071-04:00Lori, You have really had so much to deal with si...Lori, You have really had so much to deal with since I first got to know you! You have handled it all with the grace of an old soul and I love you even more after seeing how you find a way to turn hardship into love. I know you are scared and I'm so sorry you have to go through this. Right now I'm praying the diagnosis turns out to be as benign as possible. Please remember to breathe, and take care of yourself. Katie couldn't be with a better family, no matter what happens!<br /><br />Also, I have been putting off getting Cami's eye exam done. I am calling for an appt on Monday! The same thing could happen to any of our children, and like you said, without knowing the genetic history, we don't know what they may be likely to have later in life. <br /><br />With Love,<br />sherriMaps of Chinahttps://www.blogger.com/profile/02346082789657950799noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-23936228272743373432010-07-31T12:53:18.758-04:002010-07-31T12:53:18.758-04:00Lori,
I'm really very sorry to read this. I ...Lori,<br /><br />I'm really very sorry to read this. I think it's something that hits Jess and I personally, since we're often dealing with our own "anx-eye-ity."<br /><br />I've been wearing glasses since I was three and a half (I have both severe myopia and astigmatism) and Jess has a "band" around one of her eyes because of a retinal detachment at a younger age. Talk about bad genetics!<br /><br />In both of our recent dealings with eye doctors (and we both go to quite a few specialists), there are a few things to know:<br /><br />1) Eye medicine is really coming a long way in a short period of time. This is something that the both of us have experienced. If there were ever a time to come into this world and have eye problems, this is it. Jess was one of the very first people to get that "band" technology that protects her retina from detaching. And Katie is much, much younger than we are, and it's only getting better. <br /><br />2) A few Google searches (and I'm sure you've been doing the same) seem to show a promising amount of progress on her specific eye disease. It could be that in the worst case scenario, simply playing the "delay game" might be enough to prevent your worst fears from happening.<br /><br />3) Her hopes, dreams, happiness and future won't be impeded upon no matter what happens, and it won't ever take away her joy for life that you love and treasure. It seems that people with this disease have overcome their struggles and become wildly successful in life. Willie Brown (the former mayor of SF) and even a former child actor who became a Supreme Court law clerk (!) have this.<br /><br />4) There's something magical about fate sometimes. She's here, in the US, with close access to one of the best eye centers in the world. She's part of a wonderful, loving family who will do everything in their power to help her. Despite what you're all going through right now, that sure is some luck - and more importantly, love - on her side.<br /><br />Our love to all of you,<br />Brad and JessBrad Levinsonhttps://www.blogger.com/profile/04935930233980299695noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-86476738442425037472010-07-31T10:02:06.744-04:002010-07-31T10:02:06.744-04:00I don't even know where to begin Lori. Please...I don't even know where to begin Lori. Please know that you have our love & support along with prayers & good vibes being sent your way.<br /><br />When we adopted our children, all we really wanted was to have a child (or children) in our lives to love forever. Who knew the path we all chose would lead us in such directions? Not having a biologicial history is so damn frustrating.<br /><br />If there's anything I can do to help, please know I'm here for you - even if it's only to listen.<br /><br />Love & hugs!Tammiehttps://www.blogger.com/profile/15445009162437948172noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-52719607136771747912010-07-31T09:49:09.604-04:002010-07-31T09:49:09.604-04:00Lorie, trying to exhale here. Will this affect bot...Lorie, trying to exhale here. Will this affect both eyes or just the one eye? I'm definitely a praying friend and have started already. This little comment seems so trivial for the words and feelings I have. You are loved and you don't walk alone. My aunt was almost blind and totally blind her last years. She was my favorite aunt and her vision never slowed her down. Your burden is heavy on my heart but all our thoughts and prayers are with you daily. We love you. One day at a time, dear lord, one day at a time.recoveryagent2https://www.blogger.com/profile/13939435128246272955noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-10790016361403618252010-07-31T06:36:27.525-04:002010-07-31T06:36:27.525-04:00OH Lori.....my heart is pounding as I write....I w...OH Lori.....my heart is pounding as I write....I will lift her up to the Lord and ask for complete healing, strength for you and Mark and a sense of calmness for Katie as she must feel that things are happening to her.<br /><br />Hugs,<br />SteffieSteffie B.https://www.blogger.com/profile/10961855406741293851noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-68324675622010701262010-07-31T01:53:58.867-04:002010-07-31T01:53:58.867-04:00Oh sweetie -- sending you good thoughts and prayer...Oh sweetie -- sending you good thoughts and prayers and huge hugs. What frightening words to hear.M3https://www.blogger.com/profile/13775708069296721624noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-27732219225524623812010-07-31T00:04:03.080-04:002010-07-31T00:04:03.080-04:00Praying for Katie, and all of your family.
Fellow ...Praying for Katie, and all of your family.<br />Fellow MeiDreamer<br />Samantha in MNSamanthaRhttps://www.blogger.com/profile/15445012413688986589noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-60342088966308944752010-07-30T23:37:24.267-04:002010-07-30T23:37:24.267-04:00Katie will be in my thoughts. If you need anythin...Katie will be in my thoughts. If you need anything please don't hesitate to ask.<br /><br />Big HUGS going your way.Candyhttps://www.blogger.com/profile/06295079361015465331noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-21924385178934829102010-07-30T23:27:18.013-04:002010-07-30T23:27:18.013-04:00You are right, don't let her "go there&qu...You are right, don't let her "go there" until you are able to. That way, you can pave the way should the worst be realized. I'm so sorry you're going through this. I will most certainly be praying. My heart just sank for you and Katie.Anonymoushttps://www.blogger.com/profile/10014999447222122396noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-29389961187929262722010-07-30T23:13:22.143-04:002010-07-30T23:13:22.143-04:00You have my prayers! You are not by the leading e...You have my prayers! You are not by the leading eye institute by happenstance, Lori...this is going to work out. Katie could not possibly have more supportive, wiser, loving parents than you and Marc. You will get through this! Thinking of you all,<br /><br />KelleyKelley https://www.blogger.com/profile/14274542360842972389noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-88070829978194578932010-07-30T22:40:55.586-04:002010-07-30T22:40:55.586-04:00My heart sank reading this..... I am so very sorr...My heart sank reading this..... I am so very sorry Lori. I am thinking of you and keeping you all in my prayers.<br /><br />Hugs to you~<br /><br />LisaHalf Gaelic, Half Garlic!https://www.blogger.com/profile/17227046808604837073noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-36591415960183340692010-07-30T22:20:04.800-04:002010-07-30T22:20:04.800-04:00Lori, I wish I had some amazing words for you but ...Lori, I wish I had some amazing words for you but I am at a loss. Prayers for you and for sweet Katie and your family.Michellehttps://www.blogger.com/profile/03234193168683969492noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-11622341505457574722010-07-30T22:19:03.725-04:002010-07-30T22:19:03.725-04:00Lori and Marc as we cannot imagine what you are g...Lori and Marc as we cannot imagine what you are going through emotionally and will send positive vibes your way constantly.<br />Along with those vibes I send to you the biggest hug, with love.dawnhttps://www.blogger.com/profile/10929152764990722808noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-77818543808742573342010-07-30T22:15:05.767-04:002010-07-30T22:15:05.767-04:00Lori: Tears are welling up in my eyes as a mom an...Lori: Tears are welling up in my eyes as a mom and your friend, feeling your anguish and helplessness for Katie. Please know that I will pray fervently for good results on test day and for healing of whatever it is that is affecting Katie's vision! We love you both here in Jax. <br /><br />Love and peace,<br />Donna and CatherineZhangshuMomhttps://www.blogger.com/profile/12688062332699406403noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-39432525928769167762010-07-30T22:13:40.480-04:002010-07-30T22:13:40.480-04:00(((Lori))) Having dealt w/devastating news with my...(((Lori))) Having dealt w/devastating news with my son, I totally understand how you feel. It is a horrible feeling, a helpless feeling. You feel faint. I remember that feeling.<br /><br />We only told Andrew what he needed to know at the time and he preferred it that way too. Nothing wrong with that. While we told him he was dealing with leukemia, i.e producing too many white cells that were hurting his healthy cells, we NEVER mentioned cancer, that word was just too big to deal with for him...and me!<br /><br />I will keep Katie in my prayers and ask Andrew to help in any way he can. He has helped with many healings. Please know that if she does lose her eye sight, she is still going to have a magnificent life and probably touch even more lives. I know when the worst happened to us, that was the case. I continue to get emails from people around the world that Andrew has touched...even since leaving here. <br /><br />One thing we learned to do was to live in the moment and appreicate each moment we had with our son. SO don't worry about what might happen and enjoy the moments you have now.<br /><br />Wishing you and your family the very best!<br /><br />Abundant Blessings of Health!<br />ConniePrettyMama22https://www.blogger.com/profile/07322127328981734546noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-33791763933973324622010-07-30T22:12:12.862-04:002010-07-30T22:12:12.862-04:00I am so very sorry to hear this news. It brought t...I am so very sorry to hear this news. It brought tears to my eyes to know that she has to endure all of this. I am praying for her and will stay very positive. keep us posted.M and M Girlshttps://www.blogger.com/profile/02426804647727690118noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-29503280201208274242010-07-30T22:08:02.934-04:002010-07-30T22:08:02.934-04:00I am so sorry, my thoughts and prayers are with yo...I am so sorry, my thoughts and prayers are with your little girl.Yolihttps://www.blogger.com/profile/06068063513978782703noreply@blogger.comtag:blogger.com,1999:blog-10518106.post-70583611619077974042010-07-30T22:05:55.963-04:002010-07-30T22:05:55.963-04:00You have our prayers, our support, and our positiv...You have our prayers, our support, and our positive thoughts. I don't think you should go there yet either, cross that bridge if and when you have to. <br />Sending you all huge hugs.Vivian Mhttps://www.blogger.com/profile/14901008350652019275noreply@blogger.com