Tuesday, August 31, 2010

Emotions are high!

Tomorrow, Katie has the test that will finally give us some answers about her eyes. Hopefully the answer will not be one of a diagnosis that will rob her of her sight. I have prepared myself though...I am not going into this with a less than prepared mind. The first few days after her Pediatric Ophthalmologist was concerned enough to order this test were ones of sadness and anxiety for me and Marc. After lots of "what ifs" we decided that the only thing to do was to put it aside for the month and let the time pass without the constant conjecture. During these last weeks I have made peace in many ways with my deepest fears. If Katie does indeed have Retinitis Pigmentosa or a similar affliction, we will do everything in our power to make sure she has the best chance possible to keep her sight for as long as humanly possible. I am just going to be grateful in the knowledge that even though it CAN be a tragedy to lose one's sight, it will NOT be one for our Katie. She is a strong and resilient child with a great mind. I marvel at her mind every day and I know that if one of her senses is fading or lost, then her mind will be strong enough to help her to accommodate that loss. We know that she can live a full life no matter what.

I am certainly not saying that I am resigning myself in advance to such a diagnosis. I am simply going to utilize the "glass is half full" way of thinking. There is really no other choice is there?

Today, we went down to the hospital for all of the pre-procedure testing and consults. I am feeling loads of anxiety but my anxiety right now has to do more with our child undergoing general anesthesia. I am doing my best to get in the same positive space about this but hey, I am a work in progress and right now I am not struggling a bit.

I will share the news as soon as I have any. Love to all of you that are still keeping her in your thoughts and prayers. It truly means the world to us.


Thursday, August 26, 2010

Is this the criteria by which a school should be judged?

Apparently Katie thinks so!

At dinner tonight Katie told us that she really likes her school but not the toilets!

"The toilets at my preschool were much better than the toilets at my new school. The toilets at my new school are too small; they are for babies! My feet even touch the floor!!"

Katie's preschool is also the religious school site for the temple that we belong to and the two schools use the same bathrooms so they are not as big as adult toilets but obviously bigger than the ones that she is using now.

We asked her why she did not think that your feet touching the ground was a good thing. " I just liked my old school's toilets." she said "They were waaaay better!"

We were hysterical but I have to say I totally understand. There is nothing like a good toilet and one that you are used to! ;-)

Tuesday, August 24, 2010

The Dynamic Duo Go to Kindertarten and Justin is employed!

Here is my I Phone picture of our two sweeties on their way to Kindergarten. It went wonderfully well! They enjoyed their first day immensely and if it is any indication of what is to come then I would say that the year will be quite successful!

How the heck did our sweet baby girl and boy morph into capable and independent little souls who are venturing into the first year of their academic career?

All this on the heels of our son finishing law school and taking the bar. On the same day that the DD entered Kindergarten, Justin accepted his first paid position in a law firm.

Could this mother be any prouder? NO WAY!

I love being JJ, Starr and Spice's Mom. It is the best job in the world!

Tuesday, August 03, 2010

Thank you all so much!

I have received such an outpouring of love, prayers and support via this blog as well as facebook and emails! We are so fortunate to have such an amazing community of friends and family! I cannot tell you how much your support means to us. I have even had several emails communicating from friends who have family with the eye condition that we are having her tested for The emails offered positive stories of people leading purposeful lives with this condition and hope in regard to all of the cutting edge technologies that are being developed in this era of modern medicine.

I am staying as positive as possible while we wait for Katie to have the test. I just hope that the next month flies by and that she has no respiratory issues so that we do not have to postpone the test. Right now she has a cold and her asthma is flaring up so that is always concern that is in the back of my mind.

In the meantime I will be back to blog again soon with some fun stuff....I know...Maybe I will take and post a few pictures of them ;-) Told ya I was going to stay positive!!

Thank you all again from the bottom of my heart! Sending love and gratitude to all of you!