Sunday, November 13, 2011
The hurt runs deep
Saturday, November 12, 2011
What a beautiful day!
Today was the day that we had been anticipating for quite some time. I fund raise for the Foundation Fighting Blindness all year round but the Vision Walk is a marker from year to year of how far we have to go.
We awoke to a truly brilliant day. The weather was sunny and the temperature was a bit chilly when we woke up but warmed up in no time and made it just about perfect. We quickly prepared the children and gathered our supplies, made a food run and high tailed it to the park. Once there, Marc set up a table with all of the T-Shirts for The Katie Starr Team and we began to greet our team members. Family and friends started drifting in and before we knew it we were overwhelmed once again by the number of people who came to support our mission. We gave out 85 T-Shirts to our team members!!
It was then time to get up on stage and thank everyone for coming as well as all of the sponsors. I spoke a little about why I have thrown my support behind the FFB and then we had a pep rally of sorts. We ended the formalities and quickly took pictures. My dear friend Grace was the official Vision Walk Photographer and she was just amazing. I cannot wait to see all of the wonderful shots that she took!!
The corporate people took me up to the front so that our family could cut the ribbon and begin the walk....and then we were off!!
Katie Starr, Ethan and their friends took the lead on their razor scooters and the rest of us happily took up the rear by foot.
As I walked, I jockeyed between several groups of people. It was so nice to be able to talk to so many who came out as we followed the path. I was so touched by the people who happily walked to help the cause and our precious girl. I even got some fun walk time in with my big guy Justin and my daughter in law Judy. It was wonderful!
Once we were done and our thank you's were spoken, several of us stayed around and picnicked in the park.
There were other happy surprises as well today. Marc's cousins from New Jersey were in town and they came with a dear mutual friend and walked with us; which was totally unexpected. Also, our dear friends, Ken and JoAnn from Chicago were also in town and totally shocked us by coming and walking with us.
Of course, the real reason that we do this is to raise awareness and money. The Katie Starr Team was the #1 Team in South Florida and when the final count is done next week we should top $10,000.00!! I am so thankful for all that came out in support of us again this year. We were missing some friends from last year as this seemed to be a busy weekend for many but we know that many of those friends will be out again, walking by our side, if they are able to next year.
Raising funds for research is a year round business and although this one day has passed, our mission has not. The fiscal year does not end until June of 2012 for this walk season, so my work is not complete.
The link is available and I will post it from time to time.
There is no way I will rest until they can find the answers and develop treatments or even a cure for hereditary blindness. Our daughter's sight and ten million other's depend on that!
P.S. I hope to have some pictures posted very soon!
Friday, November 11, 2011
Thursday, November 10, 2011
Last minute info about the walk
www.fightblindness.org/goto/katie.starr and by spreading the word. Thank you so much!
Date: Saturday, November 12, 2011
Location: Hugh Taylor Birch State Park
3109 East Sunrise Boulevard
Fort Lauderdale, FL 33304
Registration: 9:00 am
Walk Start: 10:00 a.m.
Walk Chairs: Lori and Marc Weinstock
Support our team and help bring us closer to a cure because a Cure is in Sight!
Wednesday, November 09, 2011
Why should I get involved?
That last one is the real kicker. Macular Degeneration is a blinding eye disease that will show up in many of your families as they age. No family is exempt from these horrible diseases. It just so happens that it has touched our young daughter now and yes, while that is tragic - it is also tragic to lose sight at any age. We are truly all fighting the same battle.
“I am only one, but still I am one. I cannot do everything, but still I can do something; and because I cannot do everything, I will not refuse to do something that I can do.” ~Helen Keller
www.fightblindness.org/goto/katie.starr
Tuesday, November 08, 2011
Another Installment of: Out of the Mouths of Babes!
All I gotta say is Wow dude...that Katie Starr is too much!
Monday, November 07, 2011
I am shameless when it comes to something this important!
Sunday, November 06, 2011
Still Waters Run Deep
While cleaning Katie's desk of her hundreds of masterpieces, in order to make way for all of the masterpieces to come, this is one of the more interesting pieces that I found.
I did not know whether to laugh or cry. My little girl seems to be a bit fascinated with the Bieber! I am still digesting this newest find and contemplating the future. Can't we just freeze time and keep my baby innocent forever? I already know the answer to that but I still hear that refrain in my head over and over when stuff like this pops up. The crazy thing is that I really shelter the kids quite a bit to preserve their innocence and they have no older siblings in the home to influence them. I cannot even imagine what would be if I wasn't the way that I am....perish the thought!
P.S. Katie just walked in on me and saw this post with the pic and could not figure out why it was on the computer screen. She looked at me and through her laughter said..."and how did you get that on there you sneaky mommy!?!"
Oh man, this girl is gonna give us a run for our money!
Saturday, November 05, 2011
To Do List
1) Complete my blog a day project for the Month of November...even if it kills me!
What's on your to do list this month?
Friday, November 04, 2011
I always say that raising children is not for the faint of heart
....and it is not!
Tonight was one of the most terrifying nights of my life. Katie and her team were in the Cheer-Off and tonight was their finale performance; one that they had prepared for for several weeks. While the girls were waiting to go on for their performance, they were all doing cartwheels and handstands. Katie did a handstand that had too much force and she went over and hit her head and back hard on the ground and at the same time! She knocked the wind out of herself and she was also knocked unconscious for a few moments. I ran around the fence to get to her and the wonderful dad's on our team sprang into action over the fence to also get to her. By mere happenstance they both have paramedic training. They also thought she may have had a seizure so 911 was immediately called and the paramedics came. She was ultimately cleared and my brave girl chose to cheer in her final competition! They ended up with the trophy for the best performance and I ended up with another 100 gray hairs! Marc was working so he missed the whole horrible ordeal....UGH!!!
Poor Ethan was devastated as he watched all of this go down. When we got back from the ambulance he was sobbing. He and his sister are so devoted to each other. He was besides himself. After I calmed him down and both children were not looking I just sobbed in my parents arms.
I am so grateful that they were there for me as well as all of the families of the girls that Katie cheers with. They are so wonderful and they sprang into action for Katie like she was one of their children. They were amazing!
So today, on this 4th day of Thanksgiving I am thankful that Katie is OK after such an awful accident!
The girls did just great. Here is a video of their performance. I was kneeling in a very awkward location, just trying to squeeze in to get my video. It is a bit shaky and then I went pretty far to the right at the end, but this film will still give you a taste of their performance!
Thank G-d things worked out OK. Hug your children a little closer tonight. Life can change in the blink of an eye!
Note: Katie is the second little girl from the right.
Thursday, November 03, 2011
Trying to Pull Rank
Me: "We are pretty much always here and if by chance we are not then we have someone taking care of you....and why should you be in charge anyway since you are the same age as Ethan?"
Katie: "Because I am over 2 months older and taller than Ethan!"
Me: "That does not make you in charge!"
Ethan: "See Katie....your not my boss!!"
Katie: Looking a little peeved and not convinced at all did not pursue the issue at hand....
Two days later.....
Wednesday, November 02, 2011
A W E S O M E ! !
A W E S O M E!
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| Go Colts!! |
Tuesday, November 01, 2011
It is National Blog Posting Month!
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Sunday, October 23, 2011
Beginning to get it!
The dissemination of life altering information to children is surely a long and winding road. Our newest challenge is slowly allowing Katie to realize that she will lose her sight if a treatment or cure for her condition is not found. We have barely scratched the surface on that revelation. My gut tells me to go at her pace. I feel that this is the best way and all of the informed advice that I have received; most especially from adults who have had the same diagnosis since childhood and are now blind, has assured me that she will guide me as she is ready.
The subject that is bubbling up in our home again these days in not about eyesight but the other big issue.... adoption.
Katie brought it up again as I was washing her hair today. Without any thought, I asked her "Katie, where did you get all of this beautiful hair?" As I said it, I realized just how thoughtless the question was. I guess deep down I truly forget that she was not born to us. I would have asked the same thing of Justin and he would have answered "from you mom...or from dad!" Katie's answer to me was......"I got it from the orphanage!" My heart sank! "No, Katie...you got your beautiful hair from the mommy and daddy that gave you life." "True", she said..."I think that they had poor eyesight too!" More heart sinkage.....
This led to an ongoing discussion between our two little ones as Ethan sat drying himself off and Katie was still in the shower.
Katie: "My mommy and daddy in China gave me away because they were poor."
Me: "That may or may not be true...remember I told you that there are many reasons why your birth parents could not take care of you or could not keep you with them...one reason could be that they were very poor and could not properly take care of a child and they are many others reasons as well; including the law in China about having more than one child."
I have never told them about the "one child policy" before, as I have always thought it was a bit more than they could grasp and today it seemed that the time was right to touch upon it. I explained that in China, for many years, it was against the law to have more than one child and that if people did so, then they were unable to keep the child.
Ethan was incensed by this news. "The law in China is bad!!" "They are bad in China and they do bad things!!" I explained that this was not true. That true, it is was NOT a good law at all but that the government had to come up with a solution since there were more people in China than food to feed them all. He asked me how I knew that THEY (Katie and Ethan) needed a home and I told him that we wanted to adopt babies and that we were lucky enough after asking the officials in China, to be given the opportunity to be their mommy and daddy. I explained that they are many good people in China and that those people want the children to have loving homes and that surely their birth parents would be happy to know that they WILL BE BE LOVED FOREVER.
They both agreed with that fact. Ethan then left the room to get dressed and I then asked Katie if she ever thought about her birth mommy or daddy. She said that she did....that she dreamed about them and that they looked just like her. She mentioned the fact that they had poor eyesight again. Pretty amazing that she realizes the tie in there. I am not sure if she really dreams about them or she felt it was the right thing to say at the time but I just wanted her to realize that at some point she will be thinking about them and that is OK to do so. I also want her to be able to share it with us if she wants to. Ethan heard the exchange as well as he was walked back in.
I finished up by saying to both children that mommy, daddy and the whole family were so lucky that we adopted both of them into our family and that they were stuck with us....whether they liked it or not! This made them both laugh. I did not feel like laughing but I acted like I did as well.
Why do the facts of life have to be so freaking painful? I love all three of my children so deeply and they have all had to deal with very painful realities. Once again, I am left hoping that the way that I am dealing with it now will be beneficial in the future. I do know that the love I have for them guides me and moves me to do the very best that I can by them.
Please oh please let it be good enough.....
Friday, September 23, 2011
The Katie Starr Team
| Katie Starr |
This year, it is more important than ever to be a part of this important fundraising event. I have spoken to many doctors and scientists over the past year and they all say that the cutting edge research that is taking place right now is, day by day, uncovering the mysteries and unlocking the key to vision for those afflicted with hereditary blindness like our precious daughter, Katie Starr. The Foundation Fighting Blindness is leading the way by funding these important clinical trials that are our hope for her and so many others.
There are so many important causes that deserve your money. I personally donate to many of them myself. I ask you to look into your heart and remember those like my daughter who will face a life in the dark without your help. I know in my heart that our girl will be just fine no matter what happens to her vision....that is just who she is. Marc and I, like all other loving parents just don't want life to be that much more difficult for her with that additional barrier in her way. We will do everything in our power to keep the lights on for her, so I am asking you directly and I also ask you to ask your friends to please choose to give to this worthwhile cause and if you can....walk in solidarity with us on November 12th in Fort Lauderdale, Florida.
Sunday, September 18, 2011
Tuesday, September 06, 2011
Telling Secrets
Now to the chink in the armor; the proverbial other shoe that always drops.
Today, Marc and I got a glimpse as to our future and it is a bit unnerving!
The downside to virtual twins that get along this well is........
They are Co-Conspirators and they keep secrets!!!! I guess our rose colored bi-focals somehow chose not to see that!
Here is the gist of a conversation that Marc caught today from just around the corner from where they were playing:
Katie: "Ethan, I am going to tell you a secret but you can't tell Anybody!!!"
Ethan: Always the willing accomplice, "OK, what is is Katie?"
Katie: "Julian in my classroom asked me to marry him!"
Ethan: "He wants to kiss you?!?!?" "YOU ARE NOT ALLOWED TO DO THAT!!"
Katie: "He doesn't want to kiss me...HE WANTS TO MARRY ME!!!"
There is no kissing in marriage?!?
Marc popped his head around the corner and and was going to ask what they were talking about. Katie started to launch into one of her cheers from her cheerleading team to cover up her secret....OH MY! Then Marc asked her and she spilled her guts and told him. Of course, he told her that she is waaay to young to get married and to now even think about it again until she is 30...LOL.
These two always have their heads together, whether they are playing or helping around the house and most especially when they share quiet time together. I can see that the two of us are going to need to stay pretty sharp to keep up with the two of them.
One thing is for sure....it will be very interesting in our home for the next 12 years or so.....stay tuned!
Sunday, August 07, 2011
How much is too much?
Every day or so it seems we hear the cry of "look at this (insert any product here)...can I have that?" It is natural since everywhere they turn they are bombarded with the perfect "thing" that will simply change their lives. The Madison Avenue advertising machine is working quite well thank you and it's impact is felt in my home as I am sure in most of yours. Impressionable young children, naive in this consumer society that we live in, only want to succumb to the latest trend that is all the craze or to own the latest toy or electronic item this season.
We think the time has come to begin an allowance so that some understanding that there is no money tree in our back yard can come into play. They do not get most things that they want; other than what they receive for presents at holiday time and the once in a great blue moon when we just want to do something special for our two very good kiddos. The only way to really learn about money is to have it. Now that they are in the first grade and their wants have gotten greater, we think the time has come to give them some money management tools to help them sort it out. I learned a great deal about this when I parented Justin and I think I did well, as he is a good money manager. His downfall though is the same as my own and that is electronic gadgets. Back in the day there were not as many as there are now, but I did indulge myself in quite a few when my means were greater. This is where the recession and the impact that it has had on our pocketbook may come in handy. The children do not see us buying every new gadget on the market. We simply cannot do that now....it's probably a very good thing.
I cannot for the life of me remember how much we gave Justin to start off but after doing some research online about this subject, it seems that a reasonable amount to begin with is one half of their age. $3.00 for the 6 year old's seems like the right amount and we will ask them to contribute a bit towards Tzedakah (charity) each week to help them to learn to power of helping others in money and in deed.
I think that amount will also help them with a bit of delayed gratification, as it take a bit of time to save up for a "bigger or better" item at that rate. I also like the idea of having it tied to assisting us with the purchase of other discretionary items such as refreshments at the movies or vacation souvenirs as examples. Just a bit mind you but enough to understand that there really is no money fairy waving a wand to make all those things possible.
Also, we are not going to tie it to chores as we believe that the message that we want to continue to ingrain is that we all pitch in around the house as a family. That is just what is expected and money is not going to be the reward for it. If there is a much larger chore that we ask then there may be a reward for that, but it will not be the norm. That is also a difference from the past for me. Older and wiser I hope.
I hope that this combination helps them to make wise choices but I know that there will be some tweaking as we grow. We just want to give them the best foot forward down this very treacherous road; one filled with so many glittery and desired items beckoning to them with their promise of momentary satisfaction and lots of long term pain in terms of repayment; over and over again on credit.
Been there...done that....want more for my children!
I am sure that you do too....
Saturday, June 04, 2011
More adoption talk
Sometimes the unlikeliest places can become the backdrop to discussions about adoption. I am always a bit caught off guard when it happens in strange settings like it did today in a fast food restaurant.
I was with a friend at a local MickeyD's with her two kiddos and the DD. One of hers is also adopted but that was not what started the conversation; Kung Fu Panda did! The sequels toys are in the happy meals and even though I do not usually go the happy meal route, I decided to give them something special today. The toys began a discussion about China and then the following revelations came from Katie Starr....
Katie: "What do Chinese eyes look like?"
Me: "They are beautiful...just like yours."
Katie: "What makes them Chinese?"
Me: "Asian people which includes people from China in most cases have an extra fold of skin on their eyelids."
Katie: "Why don't you have Chinese eyes?"
Me: "Because I am not from China and you do because you are."
Katie: "I want your eyes to look like mine." (She looked so sad and I y heart began to sink into my stomach)
Me: "I would love to have eyes that are as beautiful as yours but remember...you were not in my tummy so we do not look alike."
Katie: "I wish I was in your tummy."
Me: "Me too baby but you were born in my heart and I am your mommy and will love you forever. That is all that really matters. We do not have to look like each other to be mommy and daughter."
She did not look very thrilled with my answers and the other kids seemed oblivious to this conversation amidst the din of the restaurant and their own conversation. My friend then spoke and reaffirmed that we are all individuals that we all have differences but all of our differences are beautiful.
Yup, all of this in a MickyD's. Lots of stuff going on all of the times in little their heads, whether we choose to see it or not. If we choose not to, then they will eventually let us know what is weighing on them.
Probably could have used something a bit stronger than my usual Diet Coke after that conversation...
Saturday, May 14, 2011
Five years on the way to forever!
The next I remember, our names were called, passports and other indentification was compared to make sure our daughter was the one that we were matched with and BAM...she was placed in my arms and she fell asleep promptly. I was quite worried about that because I new if she woke up in a strange place with people she did not know it would be very traumatic. I was correct but that is another story for another day.
Katie said something to me today that both amazed me and touched me to my very core. She said, "Mommy, I love my forever day much more than my birthday...do you know why?" "Why Katie", I inquired. "Because my forever day was the day that I got my wonderful family who will be with me forever!"













